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CURRENT LEARNING IN PALLIATIVE CARE

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Helping people with communication difficulties 1: Conditions causing communication difficulties

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FURTHER READING

Journal articles

Astor R. Detecting pain in people with profound learning disabilities. Nursing Times, 2001; 97: 38-39.

Fray MT. Caring for Kathleen: A Sisters Story About Down’s Syndrome and Dementia. 2000 B.I.L.D. Publications   E-mail: bild@demon.co.uk

Fullerton A. Examining the comfort of the unconscious patient. European Journal of Palliative Care, 2002; 9: 232-3.

Hatton C. Intellectual disabilities: epidemiology and causes.  In, Emerson E et al eds. Clinical Psychology and People with Intellectual Disabilities. Chichester: John Wiley and Sons, 1998.

Hunt A. Towards an understanding of pain in the child with severe neurological impairment. Development of a behaviour rating scale for assessing pain. PhD thesis. Manchester: University of Manchester, 2001.

Kovach CR,  Weissman DE, Griffe J, Matson S, Muchka S. Assessment and treatment of discomfort for people with late-stage dementia. Journal of Pain and Symptom Management, 1999; 18: 412-9.

Lloyd-Williams M. An audit of palliative care in dementia. European Journal of Cancer Care, 1996; 5: 53-5.

Manfredi PL, Breurer B, Meier D, Libow L. Pain assessment in elderly patients with severe dementia. Journal of Pain and Symptom Management,  2003;  25: 48-52.

Marler R, Cunningham C. Down’s Syndrome and Alzheimer’s Disease: A Guide for carers. London: Down’s Syndrome Association, 1995 (155, Mitcham Road, London, SW17 9PG. Tel; 0181 6824001)

Porter J. Ouvry C, Morgan M, Downs C.  Interpreting the communication of people with profound multiple learning difficulties. British Journal of Learning Disabilities, 2001; 29: 12 – 16.

Regnard C, Matthews D, Gibson L, Clarke C, Watson B. Difficulties in identifying distress and its causes in people with severe communication problems. International Journal of Palliative Nursing, 2003, 9(3): 173-6.

Ware J. Creating a responsive environment for people with profound multiple learning difficulties. London: Fulton, 1996

Other resources

Down Syndrome Information Network: www.www.down-syndrome.info

Down's Syndrome Association: www.downs-syndrome.org.uk

Down Syndrome Educational Trust: www.downesed.org