Back to Help the Hospices e-learning
CURRENT LEARNING IN PALLIATIVE CARE

15 Minute Online Tutorials
Home
Helping people with communication difficulties 2: Identifying distress

Introductory Level

CLIP Index

How to use this tutorial

Case study

Activities

Further activity

Further reading

Credits

 

FURTHER READING

Astor R.  Detecting pain in people with profound learning disabilities. Nursing Times, 2001; 97: 38-39.

Banat D, Summers S, Pring T. An investigation into carer’s perceptions of the verbal comprehension ability of adults with severe learning disabilities. British Journal of Developmental Disabilities, 2002; 30: 78-81.

Craig KD, Prkachin KM. Non-verbal measures of pain. In, Melzack R ed. Pain Measurement and Assessment. New York: Raven Press, 1993.

Davies D, Evans L. Assessing pain in people with profound learning disabilities. British Journal of Nursing, 2001; 10: 513 – 516.

Fisher-Morris M, Gellatly A. The experience and expression of pain in Alzheimer patients. Age and Ageing, 1997; 26: 497-500.

Fray MT. Caring for Kathleen: A Sisters Story About Down’s Syndrome and Dementia. 2000 B.I.L.D. Publications   www.bild.org.uk

Fullerton A. Examining the comfort of the unconscious patient. European Journal of Palliative Care, 2002; 9: 232-3.

Hadjistavropoulos T, LaChapelle DL, MacLeod FK, Snider B, Craig KD. Measuring movement-exacerbated pain in cognitively impaired frail elders. The Clinical Journal of Pain,  2000; 16: 54-63.

Hunt A. Towards an understanding of pain in the child with severe neurological impairment. Development of a behaviour rating scale for assessing pain. PhD thesis. Manchester: University of Manchester, 2001.

Hurley  AC, Volicer BJ, Hanrahan PA, Houde S, Volicer L. Assessment of discomfort in advanced Alzheimer patients. Research in Nursing and Health, 1992; 15: 369-77.

Ingram R. Learning difficulties and communication. Nursing Standard, 1991; 5: 36-9.

Kovach CR,  Weissman DE, Griffe J, Matson S, Muchka S. Assessment and treatment of discomfort for people with late-stage dementia. Journal of Pain and Symptom Management, 1999; 18: 412-9.

Manfredi PL, Breurer B, Meier D, Libow L. Pain assessment in elderly patients with severe dementia. Journal of Pain and Symptom Management, 2003; 25: 48-52.

Porter J. Ouvry C, Morgan M, Downs C.  Interpreting the communication of people with profound multiple learning difficulties. British Journal of Learning Disabilities, 2001; 29: 12 – 16.

Purcell M, Morris I, McConkey R Staff perceptions of the communicative competence of adult persons with intellectual disabilities. British Journal of Developmental Disabilities  1999; 45: 16-25.

Regnard C, Matthews D, Gibson L, Clarke C, Watson B. Difficulties in identifying distress and its causes in people with severe communication problems. International Journal of Palliative Nursing, 2003, 9(3): 173-6.

Simons W, Malabar R. Assessing pain in elderly patients who cannot respond verbally. Journal of Advanced Nursing, 1995; 22:663-9.

Whitehouse R, Chamberlain P, Tunna K. (2000) Dementia in people with learning disability: a preliminary study into care staff knowledge and attributions. British Journal of Learning Disabilities 28: 148-153.


©  2004 Radcliffe Publishing