Adult services need to provide support and care for these young people and their families, particularly during their transition from children’s to adult services.
Vision
Help the Hospices, and the other partner organisations, believe that every young person with a life-limiting or life-threatening condition should have access to the age appropriate care and support that they need.
This is not just the responsibility of the children’s sector, but also requires the close involvement of adult services in health and social care.
Aims of the partnership
The partnership was set up to coordinate and steer the work of the partner organisations in their approach to transition issues relating to life-limited or life-threatened young people and their families.
They will follow the DOH Strategic Framework to increase public awareness through research, conferences and by monitoring the role of the transition coordinators.
They aim to:
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share ideas and plans relevant to transitions at an early stage and working together strategically to develop new resources and services for young people and their families within both children’s and adult services
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agree appropriate joint research relating to transition and the process for commissioning such research, the organisation(s) to take the formal lead and legal responsibility and reporting arrangements from then on
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support individual initiatives undertaken by partner organisations, such as ACT’s Transition Care Pathway, across the UK
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campaign to raise awareness of the needs of young people with life-limiting conditions and to secure funding for services in transition to adult services
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influence policy makers, commissioners, regulators, service providers and planners to enable coordinated activity to meet the needs of young adults in transition between children’s and adult services.
The Transition Partnership is made up of four national charities with a specific interest in paliative care:
