PaedPalCare
PaedPalCare is an international email discussion group hosted by ACT for those working with children with life-limiting conditions. To join the group send a blank email to paedpalcare@act.org.uk
International Children’s Palliative Care Network (ICPCN)
The ICPCN is a network of organisations and individuals working in paediatric palliative care from all over the world.
The ICPCN has four objectives:
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facilitate communication and sharing of resources, information and research via its website
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advocate and raise awareness of the needs of life-limited children and their families and lobby for the global development of children’s hospice and palliative care
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create opportunities for mutual learning
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establish a fund to enable Network members to share knowledge and experience.
Email: sue@icpcn.co.za (information officer based in South Africa)
Website: www.icpcn.org.uk
Association for Children’s Palliative Care
This association's website offers several resources available to download including A Basic Symptom Control Manual (Rainbows Hospice, 2006).
Website: www.act.org.uk
Initiative for Paediatric Palliative Care (IPPC)
The IPPC website offers several useful tools and resources.
Website: www.ippcweb.org
Children's Project on Palliative/Hospice Services (ChiPPS)
The ChiPPS project seeks to make the best known practices in the field of pediatric palliative care more widely available to care providers. The website offers a range of resources for care providers.
Website: www.nhpco.org/pediatrics
Publications
CancerPain Relief and Palliative Care in Children, WHO, 1998 is available in English, French, Spanish and Italian. To order email bookorders@who.int
Cancer Pain Release Vol 19, numbers 2 and 3, 2006 is published by the WHO Collaborating Center for Policy and Communications in Cancer Care. It is dedicated to the challenges of caring for children with pain from a terminal illness and includes links to online resources. You can access and subscribe to the Cancer Pain Release publication on the website www.whocancerpain.wisc.edu or download a free copy.
Palliative care needs assessment for children
This is available on the website of the Irish Hospice Foundation. A copy of the report is available to download at www.dohc.ie/publications/needs_assessment_palliative.html
Courses
Introductory courses on paediatric palliative care are held regularly at Centre for Palliative Learning, Hospice Witwatersrand, South Africa.
Email: training@hospicewitwatersrand.org.za
Search our online database for other courses relating to paediatric palliative care.
