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Opening plenary

Help the Hospices chair, Lord Tony Newton officially opened our 2009 conference and handed over to David Praill who highlighted our collective challenge in raising our profile and standing together as the largest provider of healthcare outside of the government or private sector.

Welcome

David Praill

“The challenge of small is beautiful in a world which celebrates the large” 

In our 25th anniversary year, he announced a publication to celebrate our grant making role and the analysis of the minimum data sets relating to our member hospices.

Presentations 

 

Palliative and end of life care are human rights issues

Professor Paul Hunt, School of Law, Essex University; UN Special Rapporteur on the right to highest attainable standard of health (2002 to 2008)

 

Paul Hunt

Professor Paul Hunt, UN Special Rapporteur on the right to highest attainable standard of health (2002 to 08), proposed that the right to health encompasses palliative care.

 

The right to the highest attainable standard of health is a fundamental human right recognised in treaties and constitutions. The right to health approach to palliative care, Paul suggested, is a tool we can all use to reduce avoidable pain and suffering. There is a shared responsibility between state and non-state bodies, and went on to outline that as a minimum, countries should have in place:

  • an understanding of current palliative care provision
  • an up to date palliative care policy and action plan
  • indicators and benchmarks to measure progress
  • outreach programmes for disadvantaged people
  • accessible medication
  • palliative education for health care professionals and carers
  • palliative care at all levels of health care
  • independent evaluation.

 

He challenged non-state bodies to use this approach to address the unacceptable truth that millions of people do not access the hospice or palliative care that they need.

 

Help the Hospices chair, Lord Tony Newton
David Parill, Help the Hospices cheif executive
Barbara Monroe at the Help the Hospices 2009 conference

Barbara Monroe

“People have end of life care requirements, and we have a responsibility to deliver these without loosing the values of what is at the heart of what we have done for so long.”

Barbara challenged hospice professionals “not to fail in our nerve and vision” and outlined her thoughts of our responsibilities. These include:

  • Supporting the development of generalist health and social care workers
  • Delivering cost effective, high quality hospice and palliative care for people who need it
  • Using our social capital to change public attitudes to death and dying.

 

Establishing criteria for membership, having shared service specifications, common products and prices were elements of her suggested agenda.

 

“It matters too much to give in and be small”

 

Presentations

Help the Hospices is grateful to all presenters at the conference whose presentations appear on this website. However, the content of each presentation is the sole responsibility of the presenter concerned. Any enquiries about the content, including any intellectual property rights, should be made directly to that presenter. Any view or comment expressed is that of the presenter, and not necessarily endorsed by Help the Hospices

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