Here at Help the Hospices we understand that it is important for the people receiving hospice care to have their say, whether a patient, carer or family member. By listening to users and representing their views, hospices can continue to deliver the highest standards of care possible, to make their users feel comfortable, safe and valued.

Watch the video of people dealing with end of life issues

Click below or in the menu to the right for further information:

• share your story.
• what is user involvement.
• read some user stories and see what people have told us about their experience.
• read how local services involve users.
• Help the Hospices' user group.
• watch the video on hospice care.
• links to other useful sites.

A user quote:

“I’m lucky to have St Luke’s. And to go every Wednesday and mix there and laugh with people who you know have got cancer and they know they couldn’t be here tomorrow, here today gone tomorrow, or anything, it’s quite a thing to do. And you know you begin to realise that there are people in this world that are a lot worse off than you. I feel that, when I look at some that I’ve seen in there, I’m privileged”

A User Involvement Survey was carried out to help gain a better understanding of user involvement in hospices, share experiences and give hospices the opportunity to feed into the development of new support in this area.